Milton Keynes Children with Complex Needs service offers home care and medical supplies for children with complex needs.  The service provides nursing care and support to families of children who have complex medical needs, palliative care needs, including end of life care, complex epilepsy, haemoglobinopathies, neurodisability and degenerative conditions.  A small respite provision is available within the team for the youngest children who are not eligible for social care respite or nursery provision.

The service is available to children who are registered with a Milton Keynes General Practitioner (GP) or where there is an agreement in place with a neighbouring clinical commissioning group (CCG) to provide the service.  To use the service, individuals must be aged under 19 and meet one of the following three criteria:

• Have a severe, unpredictable or complex medical condition, for example sickle cell disease and epilepsy, and/or disability or a range of complex medical conditions that indicate a very high use of healthcare services.
• Have a life-threatening or life-limiting illness where it is expected that they will not reach adulthood.
• Have a long-term or complex condition which makes them medically unstable and requiring input from a health professional and/or regular hospital admissions or
  • Attend a special school in Milton Keynes
  • Have complex epilepsy or sickle cell disease
  • Require medical supplies
  • Have complex continence needs that require specialist input